Monthly Archives: September 2014

How Tall Am I? // Family Game Night [And A Giveaway!]

My husband and I put board games on our wedding registry. We took Boggle on our honeymoon [nerd alert :)]. We are big, big fans of board games. When we had kids, I just sort of assumed that as soon as they hit preschool age we’d be elbow-deep in Candy Land and Don’t Break The Ice. But wouldn’t you know it, my kids don’t like Candy Land. I figured we would just need to wait for them to get a little older and try again, but Landon’s occupational therapist said she thought board games would be a great way to get him used to having longer social interactions. So I went on the lookout for a board game that everyone in the family would like AND would hold the attention of my three-year-old autistic son. No big deal. ;)

Family Game Night

[She’s celebrating a Sequence Letters victory a bit prematurely. Hehe.]

We already owned a game called Sequence Letters that we played during our “school” time with Lucy and she really enjoyed it. It’s a little much for Landon since he doesn’t know any letters yet, so I started looking at other games the company made to see if any looked appealing.

“How Tall Am I?” stood out because our kids [most kids] love to measure things. Any sort of thing. All the time.

How Tall Am I? // Pre-school Aged Family Game Night

The premise of the game is super easy and the included pieces are super cute. There’s a die to roll and it tells you which part of the body you get to pick that turn. You can mix and match the cardboard pieces to make some pretty silly characters.

How Tall Am I? // Pre-school Aged Family Game Night

We played this after dinner one night [don’t mind the piles of real life in the background]. Landon made a police clown ballerina. Recently diagnosed with autism, it’s hard to keep him engaged during group play. He’d much rather play trains in his room. To help him not get frustrated and fixated on the pieces lining up and staying perfectly together, I put down a little piece of drawer liner.

How Tall Am I? // Pre-school Aged Family Game Night

Once everyone gets all the pieces needed and their characters assembled, you can measure to see who made the tallest form. When it’s just me and Lucy we also mix up the rules to try to get the shortest, or even a specific height.

How Tall Am I? // Pre-school Aged Family Game Night

We did some guessing on how tall our characters would measure in her science notebook and she drew out the figure and the ruler. We even got to talk about different standards of measure since the ruler has inches on one side and centimeters on the other.

How Tall Am I? // Pre-school Aged Family Game Night

I can’t recommend this game enough. Anything that can engage two preschoolers without any fighting is a winner. Each round takes somewhere around five minutes for the four of us to play so it’s quick enough that no one feels like they’re waiting “forever” for their turn to come around again. I bought ours off amazon, but liked the game [and the company] so much I decided to ask them to sponsor a giveaway so that one of you could have your own “How Tall Am I?”! And they said yes!

To enter the giveaway, share this post via your favorite social media outlet [facebook, pinterest, etc.]. Then come back here and leave a comment telling me where you shared it and your email. If you share it two places, leave two comments. I’ll leave the giveaway open for a week and then use a random number generator to pick a winner!

How Tall Am I? // Preschool-Aged Family Game Night

Disclaimer: I purchased this game on my own and loved it so much I decided to ask the company, JAX games, if they’d like to give one away. The opinions on the game are all mine.

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Family Pictures 2014

When you have three kids ages four and under, some times family pictures means running out into a field before the sun sets and taking a hundred or so pictures in 13 minutes until your son poops his pants, thus concluding the photo shoot.

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Some times there’s not one picture of everyone looking and your sweet husband photoshops them together for you.

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With her prince.

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Just before he squeezed his brother’s hurt finger. You can guess how that went. #thirdkidproblems

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Her sweet smile.

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How she wanted to smile.

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My love.

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Who needed convincing that our pose did not look like a prom picture.

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Hubba hubba.

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Stud baby.

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For real.

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Blue eyes.

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Heart explosion.

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Double heart explosion.

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And just for good measure, how about some outtakes?

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[should have known. ;)]

Thanks Mimi, for the pictures. For capturing beautiful moments in our crazy, messy, beautiful lives.

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For comparisons, sake: 2012 family photos.

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Autistic Days

Landon just wrapped up his first month of school. It’s been interesting, to say the least. We wrestled so much with the idea of sending him to school. We wrestled so much with the autism diagnosis. We even wrestled with the idea of having a kid in special ed. But he’s in school. And in class with two other autistic kids. And I think he’s doing great. Funny how that works.

Today was a very “autistic” day for him. I think that’s one of the reasons we really dragged our heels on believing the doctors’ diagnoses: we said he’s not autistic, he just has autistic days.

On an autistic day he might wake up scared and disoriented. He might try to order himself by piecing together intricate train lines circling around his room. I’ll try to get him to eat breakfast but he won’t. Sometimes it feels like he can’t hear well because he’s so good at tuning me out. I ask him a few times to get dressed before I have to dress him like you would a baby. He has low muscle tone and his joints are so loose. He’s also double-jointed all over and it all just makes him a bit floppy. Limb by limb, we will prevail.

I talk to him about what we’re doing. He really likes pre-warnings. That’s therapy speak for telling him what we’re going to do next. We even have to do it for which side of his mouth we’re going to brush first or he’ll bite down on the toothbrush and not let go. We’re almost finished getting dressed when I see that he’s already brought the shoes he wants to wear today over. He is very particular about his shoes. And apparently a ninja because I never saw him grab them.

Sometimes I wonder what he thinks of me rushing him. He can get so caught up in his own little world. In his world it doesn’t matter if you’re late to school or have food all over your face. Some days it doesn’t even matter if you have an accident in your pants. But it does matter if someone else touches a piece of train track. Or changes the order of the cars you lined up.

When we leave for school it’s very upsetting that Chuck left some shoes on the stoop! And they got rain in them!! After we work through that, it’s time to walk to the van. To do that we have to walk down the sidewalk to the street. He’ll start a few times and go back and start over until he gets the cracks lined up with his steps just right. At the end of the sidewalk, it’s important that no one try to hold his hand in the street. Just this street, he’ll hold your hand anywhere else. Then it’s time to walk along the crack where old asphalt meets new. He’ll stop to say, “OoooOooh.” And point at the crack to which you must reply [any reply will do]. Then he’ll keep walking. He walks into the driveway and rubs along the side of the van with the right side of his body. Just a bit of proprioceptive input before we get in the car. And a bit of road dust.

One morning the walk to the car didn’t go as planned. I didn’t realize about the asphalt crack and when I tried to put him in the car he went into panic mode and kicked me in the face. My neighbor looked rather distraught and said, “Now, you need to be a good boy for your mama.” We had to get out of the van and do the walk to the car again. But it didn’t help. The walk was already messed up. So I wrestled him into the car. I’m positive it looked the same as if you attempted to put skinny jeans on a wet pig. But we got it. There was wailing. Huge crocodile tears swam down his cheeks. And off we drove to school.

School is three-quarters of a mile from our house. A left turn, a right turn, a left turn, and another right. It’s close. I got to school and tried to brush the dirt from the wrestling match off my jeans/arms/face. Literal dirt, Jay-Z. I open the door on Landon’s side and… he smiles at me. I unbuckle him and he hops down and grabs my hand. We walk to class and he greets his classmates with a “HiiiiIIIIIiiiii.” Whatever it was is forgotten.

I hold on to his backpack, not sure if I should warn his teacher about the rough start to his morning. I watch as he walks over to a table in the middle of the classroom and uses a chair to climb and stand on top of it. His teacher patiently walks over and says, “Landon. Tables are not for standing. We need to be safe friends. Safe friends sit at the table.”

Leaving the classroom, I feel a wave of relief followed by a wave of guilt. I have three hours to do the tasks that are harder to do when Landon is around. I can let my patience guard down a little. And then I feel the guilt.

They say parents of autistic children show three types of guilt: First, most parents pick themselves apart to see which autistic behaviors came from them. “Oh, I am a bit OCD at times.” “I have to force myself to look people in the eyes; it’s not a natural thing to do.” We think back to our pregnancies and deliveries and try to flesh out anything that might have been unusual. We scour our family trees to see if there’s a genetic lineage. Second, there’s the guilt that we’re not doing enough. 25-40 hours of therapy a week is recommended. We are doing 12 hours at school and about 2 at home. We’re working on getting on a couple of waiting lists for some private therapies. By some standards, we’re failing. How much of our monthly budget should we commit to co-pays? Should we start saving for an iPad for him to use for an augmentative and alternative communication device? Did I spend enough time with the other kids? The third guilt is the guilt I feel when I leave Landon at school and head home for three hours. The relief to know that the baby won’t be screamed at. Relief of not having someone follow me around hugging my leg and leaning against me with all of their weight. Oh my gosh, the guilt of complaining about my sweet precious boy hugging me. It could choke me. But it doesn’t.

When we go to pick Landon up we watch while he sits on a tricycle in the gym, away from all the other kids. Away from the kid who’s rolling a grape between his fingers mere inches from his face. He’s trying to follow the lines of the floor tiles while he pushes it along. He doesn’t like the pedals. He can’t figure them out just yet. Sometimes when he sees us he gets a worried look on his face because he hasn’t finished following the line yet and the teacher’s aide is walking over with his backpack. On the good days when he sees us he smiles. He has the best smile.

When we walk outside a plane flies overhead and even though it’s high in the air, the noise startles him and he covers his ears. But he loves planes and after the initial shock we can point at it and say “aiiiih-yah.” It took a long time for him to point at things. I try not to take that simple gesture for granted. When you go through a long and hard journey to get something simple, sometimes it’s easy to downplay just how much work it was. I’ve been labeling everything in my life for the last two years. Lately we’ve been labeling it and then trying to translate it to sounds Landon can say. “Van. vAh. Door! Doh. Landon up. Up! Arms. Ah! Time to buckle! Buh-oh. Bye bye school. Buh buh OOooo.”

When we get home if I don’t engage him, he will go to his room and shut his door to play trains. It’s almost scary to me how comfortable he is alone in his room with the door closed, but I wonder if that’s only because it’s been approximately four years since I used the potty by myself.

On bad days he doesn’t want to make the right sounds. He chooses an “easy” sound and repeats it. All day. Sometimes he only repeats it to me: “Do you want a sandwich for lunch? Bah.” Sometimes he stands in the middle of the kitchen turning in circles repeating the sound, “Bahbahbahbahbahbahbahbahbahbahbahbah.” I never know how many repetitive things I should let him do. That seems like a pretty safe one so I let him go for a couple minutes and then ask him if he wants to wear his vest.

The vest is amazing. It’s a weighted proprioceptive vest. He loves it. I think, to him, it feels like a tight hug the whole time he’s wearing it. And the weight makes his joints feel less wobbly. It doesn’t hurt that it makes him look like he’s a member of an elite S.W.A.T. team. We all love the vest. Recently we added a weighted blanket for nap-time and a weighted lap pad to try to help him sit at the table to eat. Sitting still is really hard! He has a hard time finishing meals because sitting still is so hard.

Autistic days are hard. But I’m thankful for them. And I’m thankful for days that are less autistic. I’m thankful that I get to spend so much of my time figuring out what makes Landon tick. Helping him cope with things that stress him out. Figuring out where the cracks in the asphalt are so that we can see new things together. I’m thankful that I get to be his mom. It’s a big responsibility to be in charge of someone so great. Someone with so much potential for greatness, primed to press positive change on the world.

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How To Gain Friends & Live Richly

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Two years ago today I started this blog. At the time I was looking for a place to keep up with the egg-free, dairy-free, wheat-free, and peanut-free recipes I was figuring out for Lucy. And let me tell you, I am humbly my blog’s most frequent visitor. It’s nice to be able to take the iPad into the kitchen and pull up a recipe I know we like [because gluten-free, vegan baking is hard, y’all].

 But some time in the last couple years, I began to share fewer recipes and more “stuff”. Our life is definitely messy beautiful. Last week I opened up about Landon’s autism diagnosis. Which even for me, the over-sharer, felt hard to do. Laying things out there certainly puts you in a place of vulnerability, but it also opens you up to richness. Which is why I can honestly talk about gaining friends and living richly.

Seven years ago God lead us to a new church. We’d been shuffling around quite a bit. We didn’t know what we were looking for but we knew we were searching. When we eventually landed at Citylights Church we were stunned by the seemingly immediate friendships we formed. These people, it seemed, were just completely interested in getting to know us. They expected nothing in return. Our first few months at the church, I’m pretty sure we didn’t have a weekend night free with all of the dinner invitations. It was a widespread hospitality we’d never experienced. And it was intoxicating… in a good way.

Through the community of believers we’ve met at our church, we’ve gained so many friends who enrich our lives. They have been with us through the births of three babies [and fed us during the sleep-deprived months that followed]. They’ve continued to share their lives with us. To seek out relationships that go beyond the “what’s going on in your life?’ questions and moved to “what’s going on in your heart?”.

So instead of sharing my heart and being worried about what others might think, I shared something hard and immediately felt a sense of relief. When we’re honest with our struggles, others can sense that realness. They’re drawn to it. Friendships are formed. Deep and rich friendships.

And tonight, when I heard a message from 2 Corinthians 13:11 [ESV]:

“Finally, brothers, rejoice. Aim for restoration, comfort one another, agree with one another, live in peace; and the God of love and peace will be with you.”

I couldn’t help but feel a rush of gratitude. It’s not our specific church that gave us this life we appreciate so much, it’s being a part of a community that’s intentionally pursuing real, honest relationships that are grounded in the love of Christ. It’s calling upon the strength of God rather than depending on ourselves. A glory-strength:

“Be assured that from the first day we heard of you, we haven’t stopped praying for you, asking God to give you wise minds and spirits attuned to his will, and so acquire a thorough understanding of the ways in which God works. We pray that you’ll live well for the Master, making him proud of you as you work hard in his orchard. As you learn more and more how God works, you will learn how to do your work. We pray that you’ll have the strength to stick it out over the long haul- not the grim strength of gritting your teeth but the glory-strength God gives. It is strength that endures the unendurable and spills over into joy, thanking the Father who makes us strong enough to take part in everything bright and beautiful that he has for us. God rescued us from dead-end alleys and dark dungeons. He’s set us up in the kingdom of the Son he loves so much, the Son who got us out of the pit we were in, got rid of the sins we were doomed to keep repeating. [Colossians 1: 9-14 MSG]”

So instead of the last few weeks feeling like a haze of autism books, google searches, medical questionaires, and appointment bookings- there’s been a peace [don’t get me wrong: there was also a lot of googling]. And this crazy joy that comes from being known and knowing prayers are being prayed over you. And goodness, I felt it.